Lifestyle influencer Lauren Cummings Johnson and her husband, Wilson Johnson, are mourning the death of their 9-month-old daughter, Lily Ann. The couple announced the heartbreaking news on Instagram, sharing that Lily passed away on Sunday, April 6.
“Our sweet Lily Ann went to be with Jesus… 9 months of love, joy, and sunshine in our home and hearts,” they wrote, alongside family photos. Expressing deep faith in their message, they added, “His ways are higher and better than ours, even when we don’t understand it.”
While the cause of Lily’s death was not disclosed, Lauren had previously revealed that her daughter was diagnosed with Citrullinemia Type 1 (CTLN1), a rare genetic condition that causes ammonia buildup due to an enzyme deficiency. Lily had been receiving hospice care at home since shortly after birth.
Throughout her daughter’s short life, Lauren regularly updated her followers with moments and milestones, including Lily’s first Valentine’s Day and the arrival of her first tooth. The Johnsons expressed gratitude to those who supported them during this journey. “It was the honor of our lifetime to get to share her with the world,” they wrote. “She was pure joy and sunshine.”
Lily Ann will be laid to rest at a Nashville church on April 14. The Johnsons ended their tribute by thanking their daughter and their faith, saying, “Thank you Jesus and thank you Lily Ann for changing our lives forever.”
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