Autism is not a prison sentence

Letter April 16, 2024
Autism is not a prison sentence

KARACHI:

Autism Spectrum Disorder (ASD) remains seriously under-reported and neglected in Pakistan, lacking official recognition and support from both the government and private sectors. Often stigmatised as a mental disability, families feel compelled to isolate the affected children, perpetuating a culture of shame.

For nearly a decade, my mission has revolved around ensuring that every child can access the joys of childhood in education and social activities regardless of where they stand on the autism spectrum. Travelling across Pakistan, I have sought compassionate allies to join my cause in breaking down the prison of shame that autistic children are confined to in Pakistan.

Children on the Spectrum, irrespective of background, possess the potential to contribute meaningfully to society when they receive the right support. They deserve engagement and tailored assistance instead of isolation. Thankfully, initiatives similar to mine are also emerging, focusing on empowering autistic adolescents to participate actively in society.

Ignoring and undermining the extent of how autism impacts children’s ability to live has already impacted at least one or two of our generations. Many of these have already entered adulthood and require intensive and sometimes strenuous outreach, support and freedom from this stigma through consistent efforts from the government, private sector, parents, educators and the broader social system.

Pakistan’s ethos of unity and diversity calls for a comprehensive inclusion policy. We all need to come together and work collectively. Our future should be built on children with special abilities. In unity lies our strength, resonating with our religious, cultural and historical values. Embracing our ethos, we must forge a path toward holistic inclusion. It is not merely a duty but an investment in our nation’s soul.

Sabeen Bilal

Islamabad

Published in The Express Tribune, April 16th, 2024.

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